Support for Families
Mason’s Awareness & Support for Osteopetrosis Network (MASON)
This is a place for parents to obtain information and stories from other families who have endured the journey of Malignant Infantile Osteopetrosis. When we were diagnosed, we had no one who understood what we were going through. As we have grown, we have developed a very close knit group of families who have had children with MIOP. Some are here in the US, some are International, but all are loving people who want to support one and other. I will update this page as we gather more families together.
The stories are very personal and have a variety of different outcomes. If anyone is interested in speaking to an individual family, you can send an email through this website and we can arrange the communication.
Please see visit our MIOP Moms Facebook page and learn all about our families from Ecuador, Croatia, England, France, Peru, Australia, New Zealand, Canada and all over the USA.